Barriers to Patient Partnership and Equity

Thursday, November 23 at 12:00-1:00 pm eastern

While sectors of the health research community and CIHR SPOR have made great strides in nurturing patient partnership in POR, structural (eg: ethics review limitations) and non-structural (eg: engaging diverse voices) barriers exist to realizing the full potential of POR. Webinar panelists discuss their perspectives on common barriers/challenges and propose potential solutions and/or mitigating strategies.

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What Gets Counted: Paying Attention to Sex and Age in Health Research

Friday, November 25, 2022 at 12:00 – 1:00 pm Eastern

This webinar raises awareness of the importance of sex, gender, and age in health research and provides patient partners with practical resources and tools to contribute to ensuring that sex, gender, and age are considered in research.

Learning Objectives:

  • Learn why attention to sex, gender, and age matter in health research
  • Learn practical tips on how patient partners can advocate for more equitable research at various stages of the research process
  • Learn about a SGBA+ freely accessibly module designed for anyone (including patient partners)

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Click here to view the chat and relevant links.

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A Virtual Discussion about Patient Partner Capacity Building

Wednesday, January 19, 2022 at 12:00 – 1:00 pm Eastern

There is increasing demand to engage diverse patient partners in research to contribute their lived experience and other expertise. This webinar seeks to open a dialogue on building capacity and support for patient partners in research and how the new SPOR National Training Entity will contribute to this aim.

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Click here to view the Mentimeter results.

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Patient Partnership in Virtual Care

Friday, November 6, 2020 at 10:00-11:00 am Eastern

OSSU’s Patient Partners Working Group webinar on ‘Patient Partnership in Virtual Care’ was an opportunity to discuss how patients are partners in developing and implementing virtual care approaches, as well as the experiences of patients and health professionals in virtual care implementation in Ontario. Moderated by Julie Drury, Canadian Foundation for Healthcare Improvement, Strategic Lead – Patient Partnerships, the webinar brought together a panel of patient partners and a researcher-practitioner. The discussion centred around:

  • How has virtual care been able to integrate patient partners in its development and implementation?
  • What experiences are patients and healthcare providers having with virtual care in Ontario?

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Patient Partnership and COVID-19 Research

Thursday, July 9, 2020 at 1:00-2:00 pm Eastern

The Ontario SPOR SUPPORT Unit’s Patient Partners Working Group Summer 2020 webinar covers the issue of patient partnership and COVID-19 Research in Ontario. Two experienced patient partners and a researcher committed to patient partnership discuss the implications of the COVID-19 pandemic on health research partnership in Ontario, including on COVID-19 research specifically, but also the spill-over into other types of health research.

Discussants identify some of the initial reactions to patient partnership in research in the time of COVID, as well as the main opportunities and challenges being posed in Ontario for patient partnership. Finally, the group identify some of the changes that they hope to see in patient partnership in research as a result of where we are with the COVID-19 pandemic.

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Organizational Approaches to Patient Partnership

Thursday, February 20, 2020 at 12:00-1:00 pm Eastern

OSSU’s Patient Partners Working Group brought together representatives from Holland Bloorview Kids Rehabilitation Hospital (Nadia Tanel and Beth Dangerfield) and L’Hopital Montfort (Denis Prud’homme) to discuss how their organizations had embedded patient partnership in research beyond the level of individual projects.

In this webinar, the two groups discuss their approaches, challenges and impacts as well as answering questions from webinar participants.

This webinar builds on the work commissioned by the Patient Partners Working Group in 2019 on cataloguing organizations in Ontario that have embedded patient partnership in research (https://ossu.ca/2020/02/organizationa…) – a first take on understanding which organizations in Ontario have made patient partnership in research an institutional priority and how. The catalogue is not exhaustive and is anticipated to be added to over time.

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Equity and Diversity in Patient Partnership in Research

Monday, September 23, 2019 at 12:00-1:00 pm Eastern

In this video, Francisco Ibanez-Carrasco from the Ontario HIV Treatment Network discusses how he has seen the evolution of equity and diversity concerns in patient partnered research. Few can claim to know the history of AIDS more intimately than Ibáñez-Carrasco. Not only is he a longtime survivor — he’s been living with HIV for 25 years — but he has also devoted his life to researching ways to improve the lives of people with HIV. And his efforts have not gone unnoticed. In June, he received the 2010 Award of Excellence in HIV and Rehabilitation, awarded by the Canadian Working Group on HIV and Rehabilitation (CWGHR) in recognition of his contributions and leadership in the field.

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Communication in patient partnered teams

Thursday, June 27, 2019 at 12:00-1:00 pm Eastern

In this webinar, patient partnered team members from McMaster University discuss what it means to effectively communicate in patient partnered teams. This video features the views of researchers, health professionals and patient partners on the meaning of effective communication.

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Ladders of Engagement

Wednesday, April 10, 2019

Jennifer Johannesen discusses patient perspectives on the concept of ‘ladders of engagement’ – the hierarchy of how patients get engaged in health research. This builds on the publication on “Ladders of Engagement” available through the OSSU website at https://ossu.ca/2018/09/patient-views-on-ladders-of-engagement.

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